Acceleration Point released the study, Exploring Rare Disease Landscape Using Social Media Listening to Assess Patient Voices, this week at ISPOR 2024 in Atlanta, Georgia.
The new study leveraged social media listening to provide insights on the patient journey for Cushing’s Syndrome (CS), including a focus on unmet concerns like quality of life, support from HCP’s and peers, delayed diagnosis, missed diagnosis and caregiver support.
"As a company dedicated to revolutionizing insight generation for medical affairs teams, I am immensely proud of our team's unwavering commitment to empowering our customers with valuable patient insights”, said Acceleration Point SVP Jeff Buchanan. “Historically, obtaining real-world, patient-focused insights has been both time-consuming and challenging, yet it remains crucial. By harnessing social media data, we enable our customers to better understand patients' challenges in diagnosis, treatment, and overall quality of life. Demonstrating this capability in diseases like Cushing’s Syndrome provides access to insights where published patient data falls short."
The study found that social media listening can be valuable, especially when patient data is inaccessible. After being diagnosed with Cushing’s Syndrome, 16% of patients expressed apprehension regarding treatment and surgery, prompting patients to turn to the internet for information on how to navigate their disease. The study further covers patient-focused information gaps and recommendations for improving relationships with patients. To learn more about the study, get in touch with the Acceleration Point team at info@accelerationpoint.com.
About Acceleration Point
Acceleration Point is a leading provider of insight solutions and services for Medical Affairs teams. Our mission is to help Medical Affairs teams learn from top KOLs around the world. We are committed to revolutionizing the process of gathering, analyzing, and leveraging insights within the pharmaceutical industry, ensuring that every piece of information serves to advance patient care and organizational success. Acceleration Point is a global company with offices in Roanoke, Virginia and London, United Kingdom.
For more information, please visit www.accelerationpoint.com.
